Meeting the kid where she’s at

Stuart A. Reid reflects on raising a child with a disability:

You will learn all the lingo of the disability and rare-disease communities. “Genetic change” is now preferred to “mutation.” … Your child is not “intellectually disabled”; she is “a person with an intellectual disability.” (She is still apparently “developmentally delayed,” although this phrase feels due for a refresh, too. Is a train that is never expected to reach its destination merely delayed?)

Leave a Comment